Peter and I returned from NY last night. It seemed like a pretty quick trip this time. We left the snow in MN and arrived late Sunday night, but not too late for Peter to want a little “before-bed snack†– if that’s what you call a caesar salad, bread and manicotti! That is one of the things we love about NYC – nothing closes, or at least not until really late! And while we try not to get too carried away, what Peter wants in New York, Peter gets in New York. When you see first-hand what these kids endure on a regular basis, it’s hard not to spoil them a little.
I should also mention, since many of you have asked, that Grandpa Brian’s surgery went well and they got all of the cancer, so no further treatment should be needed. In fact, Grandma & Grandpa took the girls north with them after Great-Grandma’s funeral, which I thought was rather brave, since Grandpa was still moving pretty slow! Anyway, they came back last night and were excited to show us the pumpkins they carved, all their paintings, etc. I’m really not sure what we would do without our entire family…thank you to all of you!!!
Peter had the routine testing this round, with1 addition. He had the physical exam, with blood work, urine analysis, etc. CT scan – head, neck, chest, abdomen, pelvis, MRI of the brain (addition), MIBG scan and bone marrow biopsies. The results of the ct’s, mri and mibg and are all clear…words we will NEVER get tired of hearing! We will find out bone marrow results and a few other things next week. They also tested him for HAMA while we were there & he’s still positive, so we’ll draw blood every 2 weeks to see when he becomes HAMA-negative, and then head back for 3F8 treatment.
Since the cold, rainy weather followed us east from MN, we didn’t get out too much this time, but we had fun in the Ronald McDonald House playroom and we attended a great Halloween party there on Tues night, complete with dinner, cupcakes & ice cream, games and trick-or-treating for the kids (NY style – indoors!) We’ve probably mentioned before that the playroom on the pediatric floor at Memorial Sloan Kettering is second to none, and someone had donated costumes for all the kids, so Peter chose a Superman one and now he has 2 for this year – Superman and Blue Ninja Warrior. He’s so excited for his school party tomorrow and then trick-or-treating with sisters, cousins and Grandpa Sig! (I’m excited that it’s going to be 65 degrees again tomorrow!) Ellie is going to be a kitty and Kate a bumble bee ïŠ HAPPY HALLOWEEN!!!
Hockey started last weekend so that’s the other major excitement here! Peter and Ellie will be on the same team along with our friend Jake, and the kids can’t wait for their first “real practice†on Saturday! They’re also fired up about Uncle Tito’s new rink and being able to log some extra hours there.
Last but not least, a great big “YES!†for the Warrior Princess (Mary) on her first clean bone marrow scans… this young lady is absolutely amazing, juggling a very demanding college schedule while on chemo. Mary and her family so deserve this wonderful news!
And please, please keep little Ella high on your prayer list…she needs a miracle! We are so sad about the road that she, John, Erika and Caden have to face.
A journal of Peter’s journey
So good to hear that Peter is all clear. Have a great Halloween!
Hey Eigners!
Thanks for the great update! So glad to hear the gang is doing well! Thank goodness that Grandpa’s cancer was cleared out! Yeah!!
It was wonderful to have Kate-Kate & Ellie here this week! We all get so excited when we get a phone call from Grandma Barb asking if the girls can come play! Yes, yes, yes!!!!
How fortunate are we that Halloween (today!!) is greeting us with warm temps and sunny skies! Another yeah for that one!! Have fun trick-or-treating tonight! We’ll be taking out a frog (Parker), Dorothy from the Wizard of Oz (Lily), and a cowgirl (Emily). Little Ivy will also be joining us as Elmo! (or “Melmo”, as she calls him!!)
We miss you all & so are so happy to hear that things are going so well! Just a couple more weeks until the nukie fairy comes……
Love always~
Jenni, Ryan, Emily Clare, Lily & Parker
Thanks for the update Erika, so very glad to hear all the tests etc. are clear, what a blessing for Peter.
Sounds like as usual the Eigners life is pretty busy and now with hockey season underway too. A good thing that Peter and Ellie are on the same team that will save some running, right?? haha
You all take care and hope to see you all soon, we would like to get up that way and see the new rink, pictures look pretty cool !!
Love and Gods Blessings,
Uncle Chuck and Aunt Rose
Hey Guys –
glad to here that things are going well for everyone! I am planning on going to the bone marrow transplant renunion thing this weekend and was wondering if i might see you guys there? I hope you have a great weekend and keep getting great results!
Congratulations on clean scans!!
Love, Nikki from the Blogathon
Congrats on all the clean results, that’s fantastic.
What wonderful news!!! We are very happy for you guys. We still think of you guys all the time and hope we run into you again…maybe at the rinks or a Rosemount football game? 🙂 I am sure it is very hard to see many of your friends with this same disease suffering so. We will keep the Eigners and all of your friends in our thoughts and prayers.
Love
The Ellingsons
Thank you for the update! I’m glad you included the good news about Brian. Wish I could have been there to celebrate your Gramma Marie. Best to you all!
Hey ~ this is for Miss Kate!! HAPPY BIRTHDAY, sweet girl! I am so sorry I missed the actual day! (the 15th, right??) I sure hope you had a wonderful birthday party! Did you get some cool presents?? Oh, Kate-Kate, I can’t believe you are 3 already!? You are getting so big ….. 🙂 Did the nukie fairy come?? Wow ~ I guess that means you are officially a big girl now!
We love you, sweet Kate!
Hugs & kisses to Peter, Ellie, mommy & daddy, too!
XOXoxOXOxOXoxoXox~
Jenni, Ryan, Emily, Lily & Parker
Our love to you all. Have a wonderful Thanksgiving………..
The Other Part Of The Eigner Clan