Update from NYC

The testing started yesterday (Wednesday), but didn’t go exactly as planned. Or I could write that the testing went as expected or that it went normally, since it never goes exactly as planned. In either case, there has been some testing, but no results as of this evening.

The plan was for head and neck CT scans, but that has changed to include abdominal CT scans. The head and neck scans are complete and the abdominal scans will happen… sometime. Peter received a leg stint yesterday for upcoming shots. The bone marrow biopsy was changed to happen next Friday, during or after the antibody treatment(?). This caused a conflict with the flights back, so the itinerary has been changed yet again. It was a busy day.

Today the MIBG scans went fine and Erika and Peter had substantial time to bum around. I spoke with Peter this evening and he sounded chipper on the phone. Actually, he was using a weird voice and being a goof in general. He was preparing to dig into a Subway sandwich.

I’ll get the test results posted as they come in! Ty and the girls are headed out to NYC tomorrow morning.

6 Replies to “Update from NYC”

  1. Hi Guys- We are Praying for Great results on Your Testing.. Peter…
    Jake got Your picture today and He Loves it .. and Guess What He can See it !!! Jake has Gotten Back quite a Bit of His Eyesight.. He can see 6-8 Feet in front of Him He read the Name on The Caller ID on The Tv Tonight.. Thank you all for You Love Support & Prayers.. I cant wait for The Day we can all hang Out.. Bu The Way How about Those Colorado Rockies Pete…

    Stay Strong..

    Love
    The Cohen Family

  2. Hi Pete~

    Your sisters sure were excited to head to NYC! Kate came in crying this morning — evidently she thought she was headed straight to Gramma Mary’s (I guess I wasn’t the person she wanted to see!!) Once she calmed down, she invited me & Ryan & Lily & Parker & EmilyClare & Carly…. and…. well, she basically invited everybody to fly along with her to “New Yoke”. As much as I personally would LOVE to take her up on her invitation – I am stuck back here taking care of all the munchkins! So, since I can’t be there – I made Ellie & Kate promise to give you big hugs from me …. so, you better be certain that they pass them on! 🙂

    I hope you & Mommy have had fun bumming around New York City! I bet you will have a great time this weekend with your daddy & sisters there, too! There is so much to see and do…. .

    We look forward to hearing about your results! We, of course, continue to pray for everything to be bright & sunny…. for all good news… and for a successful and positive stay in NYC. Keep us posted!

    Thinking of you always~
    Ryan, Jen, Emily, Lily & Parker

  3. Keeping you in our thoughts and praying for good test results! Stay strong Pete.
    Love, Glenda Steve Josh Megan and Jake

  4. Hi Eigners,

    Praying like warriors in Eden Praire. My Irish dancers are holding a bake sale for the Benefit Fund in the next few weeks. I shared Peter’s sstory with the kids and had them come up with an idea as how we can help and the Bake Sale was a huge hit. I told them we won’t have it until after I run the half marathon…because have you ever been to a bake sale and not eaten anything. 🙂 Peter, my friend is a pastry chef and she is making hockey stick cookies with your name on the front for the sale and she will make extra for you too…Trust me they are the best cookies in town!!

    God Bless all of you, hang tight, good results will happen!!

    The Nahorski’s

  5. Thanks for the update Uncle Matt…you are so appreciated.

    Peter, We’re sure that you are looking forward to seeing your dad and sisters again. We think about you daily and send you much love always.

    Uncle Ed and Aunt roz

  6. I am praying for you Peter, keep up the good work…I look forward to hearing more about you having fun and being a kid. You are so brave and strong. Keep it up!

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