Peter’s treatment schedule is more dynamic than one would hope right now, but we know a couple things. First, Peter WILL have surgery again to investigate/remove whatever is showing up in his original tumor bed. This time the surgery will be in New York. Erika mentioned that she’s relieved that the surgery is going forward. Since there is ample doubt about what is showing up, it’s hard to just sit back and wait while the disease could be gaining momentum. And second, Peter will be going to the U of M on July 18th for more CT scans of his entire neck, chest, abdomen, pelvis and his head.
When everything is going to happen — and how the current antibody treatments are affected — is a little up in the air. The surgery is scheduled for August 17th in NYC (with a pre-op appointment on the 16th). But if they get a cancellation, the surgery could be as soon as August 1st. Antibody treatment is scheduled for the week of the first, so that would change if the surgery was moved up, but they’re not even sure that he will be doing another round of antibody with surgery on the horizon. And the post-surgery antibody treatments are up in the air, too. So you can see why Ty and Erika should be using pencil on their calendar. It’s a little hard to schedule flights with everything shifting.
Peter is doing well, though. I’m sure he’s having a great time at home with his sisters. He’s not in any pain and he can be a kid for a while. I have some new pictures to get up on the site, so you can see for yourself.
Our prayers and heart are with you all…………
love,
Uncle Ed and Aunt roz
Peter~
We had a blast with you at daycare today! The kids get so giddy when they know “PETE’S COMING!!” Your energy is boundless and you most certainly act like any “normal ‘ol kid”. You are a phenomenal kid, Peter! You take such pride in your little sisters … always there to offer a helping hand …. and sometimes even explaining to the (older!!) daycare kids how to take turns! You are a bright young boy, my friend. I find myself just watching you sometimes and not realizing how gigantic the smile is on my face… I am thinking what a beautiful and brave soul you are and how, even now, I think that this is so unfair that you are fighting cancer. I still sometimes think back to August 2006 when Mommy called me with ‘the news’…. it just seemed so unreal and so unfair. Today, as I sat and watched you play tag and baseball…. and build forts…. and run like the wind…. and color…. and ride bike ….. and play ball…. and build giant towers…. I felt those same feelings wash over me again. It seems so unreal to look at this seemingly healthy, vibrant, active little boy…. and then to think he’s got cancer. It just doesn’t seem fair. You still have a relatively long road ahead of you, but just remember that God is riding right alongside you. I heard some very wise words from a very good friend of mine. This little boy is only 5… but he is wiser than most people 10-times his age. I will leave you with his words of encouragement….
“Don’t be scared. Everything is going to be OK. The doctors are going to make you all better. They won’t hurt you…”
(pretty powerful, huh!)
Love you bud,
Jenni
Peteman,
Hang in there bud, and continue to stay strong. Uncle Roy brought you back a cool hat from New Zealand.
Take care,
Love Uncle Roy
Peter it was nice to see you in the Brainerd Dispatch earlier this week.
We are glad you are enjoying some “quality family time” at home.
Continue to stay strong.
May God continue to bless you and your family today and always.
xoxo
The Faacks Family-
Colleen, Lonnie, Olivia, Jessica and Jacob
Peter and family I will continue to pray for all of you during this difficult time. Stay strong and I am glad you are having some time at home with your sisters and the rest of your family. God Bless, Cheryl Bailey
Peter, my husband Aaron and I read your site every chance we get. Your story has touched our hearts. You have so much support and the prayers of many. You will overcome this disease one day at a time. Keep fighting and know you are in our prayers every day. God bless.