Peter and family arrived back in Brainerd last night, just before the big storm. They were in town for a couple more tests and a consultation this week. He was complaining about some pain around his hickman (lines in his chest) and they seemed to fix it without much trouble. I don’t know much about the test results at this point and probably won’t until Monday, but I do know that his hearing is probably a little worse than previously thought. He has lost some frequencies within the speech range.
Next week the real treatments fire up again. After a thorough meeting with the Bone Marrow Transplant doctor on Monday to cover the possible risks, side-effects and benefits of the BMT, Peter will be admitted to the hospital (I think in the new location on 4B). On Tuesday, March 6th, the final knockout round of chemo begins and lasts for four days. The round is powerful and meant to completely wipe out his system. Writing that makes me shudder. Yet to think that this should be his last round of chemo EVER is cause for some cautious excitement.
Tuesday, March 13th, is day zero — Bone Marrow Transplant Day. They refer to this as day 0 on the 100-day journey. Most patients are hospitalized for five weeks, recovering and battling mouth sores. The Eigner’s will be tied to the hospital for a long while beginning Monday. And the rules change somewhat in Peter’s new home on 4A, the BMT unit. First of all, no cell phones allowed. How the heck did we survive just a dozen years ago? I’ll post the room phone # once it is established. Also, there are strict visitor restrictions. I believe there can only be three people in the room at a time or something.
Additional activities during the 100-day journey include radiation beginning around day 26 and some to-be-determined antibody treatments beginning around day 66. And that will take Peter right through the summer into the fall.
As great as Peter is doing, we’re sensing this journey is going to be difficult. Thanks for all of your continued support. Thanks for all the decorations that are ready to decorate his room. And thanks for all the prayers.
Hi Eigners–
Just wanted to take this opportunity to let you know that you are all in our continual thoughts and prayers.
Hi Peter, I am so happ to hear that your scans were still clear! eep it up big guy you can do it. My kindergarten class made you some pictures so I am going to send them to Uncle Matt for your new room in 4B. I am also planning on visiting once you feel up to it. Talk to you soon.
Your friend, Bambi
Dear Eigners,
God bless all of you and I will keep praying for all of you!
Love,
Linda
Hey Peter
My ice mites play your team Sat. moring if the snow lets up. I
bought Snickers cand bar for everyone, think they will like that?
We played in the Long Prairie Jam. last weekend and it snowed. Oh well it’s Tourney time in Minnesota.
Well Peter God speed in your final bought with the bad guys. I’ll be prayin for you, you can count on that
Coach Karen
P.S. Keep your stick on the ice .
We continue to think of Peter and your family during this difficult journey. You are never far from our thoughts and prayers. Good luck and stick to your guns as you always have done. The nurses are lucky to have you on 4B-I bet the 5B staff is disappointed that they cannot take care of you, but excited that you are going into the final treatment phase. We will keep checking your website and sending positive, healing 4 year old boy thoughts your way!
Sincerely,
Peter Wolkoff and family
To the Eigners and all of your extended family:
Best of luck… our thoughts and prayers are with you always.
Love,
Kevin, Sara, Marley, Ty & Kaia
Peter,
God’s blessing, strength and healing to you. We’re praying for you, big guy.
The Rings
Peter: We are thinking of you and saying lots of prayers that all goes well for you and that you keep fighting hard and keep that winning smile.
Things may seem bad for a while but you are a strong boy and can get through this and we are with you all the way.
Ty and Erika: This long journey should be coming to an end soon and hope the results are as promising as it has been so far. We are thinking of you and if you need anything please let us know. God Bless all of you and you are in our thoughts and prayers all the time.
This website is such a great way to keep in touch to know what is going on so you and your family dont have to let everyone know individually by phone. Thanks to Uncle Matt for all his hard work and dedication to you all.
Keep the Faith and know that we all are here for you.
Love, Uncle Chuck and Aunt Rose
Hey Peter, Brooke is working on some pictures for your room- we will send them down to your uncle next week! We are praying for you everyday and hope that all of this stuff that you have to go through goes as quick and smooth as possible! Take care buddy- you are so brave and strong!
Love, Greg Brenda Brooke & Ty!
Sounds like a tough road ahead. Ty, you and your family will for sure be in my thoughts and prayers. Stay tough Peter!!! you have made it this far!!!!!